Established by philanthropist Bill Moss AO in 2007 and chaired by his daughter Natalie Cooney, FSHD Global is committed to funding research aimed at treating and ultimately curing Facioscapulohumeral Muscular Dystrophy (FSHD).
The evening sees over 500 corporate and philanthropic guests in attendance, with Jamie Durie OAM as host.
Celebrity chef Luke Mangan OAM has crafted a Lindt chocolate-inspired menu paired with champagne from Dom Perignon and Moet Hennessy.
The night will be filled with immersive entertainment, auctions, and endless indulgence. This year’s theme, ‘Around the World,’ is set to transport attendees through a decadent global journey.
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FSHD is a progressive muscle-wasting disease that affects 1 in 7,500 Australians. It weakens skeletal muscles, severely impacting the ability to walk, smile, and perform everyday functions.
The funds raised will support FSHD Global’s Clinical Trial Passport initiative, which aims to assist Australian patients in accessing life-changing clinical trials.
“The Sydney Chocolate Ball has raised over $22 million, funding 66 research grants across 11 countries,” said Natalie Cooney.
“This year’s funds will help bring clinical trials closer to Australian patients.”
Without government funding, FSHD Global relies entirely on community and corporate support.
Pearl Dy is a community manager and journalist. She is passionate about business and development particularly involving not-for-profits, charity and social entrepreneurship.
Third Sector acknowledges the traditional custodians of the lands where we live, learn and work. We pay our respects to Elders past, present and emerging.